and producer Matthew Ashford, one of the co-founders of Retinoblastoma
International, was interviewed by CBS Radio where the discussion focused on the
work of RBI in raising awareness and promoting early detection. During the interview, Mr. Ashford outlined
not only the physical, but also the emotional effects on children and their families
facing the challenges associated with eye cancer treatment and recovery. In fact, children may exhibit signs of
Listen to excerpts from the interview (Duration: 00:11:44)
You're invited to listen to the latest edition of the RBI podcast series, which offers a discussion with Stephen Haddad, Director of Ocular Prosthetics, Inc. in Southern California. He is one of only a handful of licensed ocularists in the United States.
In the interview, Mr. Haddad describes the job of an ocularist, which is to design, fabricate and fit prosthetic eyes for patients who may have lost an eye due to injury or illness. It's a job that requires both scientific precision and artistic skill. He offers fascinating insights into the joys and challenges of working with the young children in his practice, many of whom are retinoblastoma survivors and who grow up under his care. He also discusses some of the common misconceptions people have about prosthetic eyes.
For more information about Stephen Haddad's work, go to www.ocularpro.com
RBI is pleased to offer a new edition to its podcast series during Retinoblastoma Awareness Week, (May 8-15).
This podcast features a discussion with Dr. Susan Lee, Director of the Proteomics Core at Children’s Hospital Los Angeles. In the interview, Dr. Lee outlines what proteomics is – and why it is such an important area of research. She describes what her work entails and what makes it unique among other types of proteomics research projects around the country and across the globe. For example, she says that most other projects tend to focus on adult diseases, such as prostate or breast cancer, while hers is unusual in its emphasis on diagnosis and treatment of pediatric diseases.
While her efforts are focused on retinoblastoma and osteosarcoma (a common secondary cancer for retinoblastoma survivors), Dr. Lee points out that the results of her research could have implications for all kinds of pediatric and adult health issues. In addition, a key objective is to help reduce the amount of costly and invasive testing, which could positively impact children all around the world.
Dr. Lee also discusses the role RBI has played in furthering her research efforts.
For more information about Dr. Lee's work at Children's Hospital Los Angeles, go to www.chla.org/proteomics
In the second part of this two-part interview, panelists Susan Dumm (current board president) and Matthew Ashford (co-founder) continue the discussion of Retinoblastoma International's ongoing priority goals and activities. Sue describes RBI's outreach and awareness efforts. Matt relates new learning and understanding about the importance of a holistic approach to family support. They also discuss ways in which people can help contribute to the work of the organization. Lastly, we get a glimpse of what's up ahead for Retinoblastoma International regarding its future activities. (Duration -- 00:09:37)
For more information, please visit our website at: www.retinoblastoma.net or join us on Facebook at www.facebook.com/retinoblastoma
In this interview (approx. 22 min.), Retinoblastoma International co-founder Matthew Ashford and current board president Susan Dumm discuss the importance of early detection and raising awareness about retinoblastoma. They share their own insights and experiences as parents of children who survived battles with this devastating eye cancer.
You'll learn about retinoblastoma -- what it is and the common symptoms. Matt and Sue discuss exciting breakthroughs in the area of proteomics research (which is focused on identifying biomarkers for possible secondary cancers). This research could hold promise for more effective diagnosis and treatment of all kinds of cancer. Sue outlines facets of Retinoblastoma International programs. And Matt talks about the new fundraising calendar for 2011 that will help generate much-needed funds to support the ongoing work of the organization.
For more information about Retinoblastoma International (and to order the calendar), please visit: www.retinoblastoma.net
Also, please join us on Facebook at www.facebook.com/retinoblastoma